Who we are?
Echoes is a collaborative research project led by King’s College London and University of Maastricht. If you need to contact us about this privacy notice, please write us to echoes@kcl.ac.uk
What information we capture, and why do we process your data?
We are testing the potential benefit of using mobile phones for an improved management of cardiovascular conditions. We are thus evaluating the quality of the sounds recorded by mobile phones.
To this ends, we capture the sound of your heart, together with some basic demographic data you may choose to share (age, gender, height, weight, cardiac condition) and some information about your mobile device (brand and model of your mobile device, the date and time of acquisition, and your approximate geographical location). Besides, each mobile that has Echoes installed will have a unique identifier (user ID) associated to all recordings provided by it. Echoes app will not access or require you to provide any other personal information.
What is our ‘legal basis for processing’?
Data protection legislation allows us to use your personal information in this way because it is required for our public purpose as a teaching and research institution. The benefits of the processing are the scientific progress towards an improved healthcare of cardiovascular conditions.
The use of echoes implies that you have actively given us your permission (or ‘consent’). You are free to withdraw at any point during the study, without having to give a reason. You are able to withdraw your data from the project, by e-mailing us on echoes@kcl.ac.uk the user ID that will be displayed on the screen of the app, up until the day we make the database open to other researchers, planned to be in Fall 2022, after which withdrawal of your data will no longer be possible due to the lack of control we will have of the copies of the data.
Do you have to provide your personal information and what are the consequences of not doing so?
There is no obligation to use Echoes, or to provide any personal demographic information if you use it. There are no consequences.
How long do we keep your information for?
We will keep your information for two years, after which our pilot study will be finished. We will then remove the user ID, and the fully anonymised data will be released in a database to the research community.
Do we share your information with other organisations?
The data will be accessible by Cellule Studio Ltd, the design studio that has helped us to put the app together.
What are your rights and who can you contact if you have a concern?
To find out more about how the university deals with your personal information, including your rights and who to contact if you have a concern, please see the university’s core privacy notice at kcl.ac.uk/terms/privacy
Contact us at echoes@kcl.ac.uk
A research project led by King's College London and the University of Maastricht.
App and website designed by Cellule Studio 2020.
Funded by the
Wellcome Trust and by the European Union’s Horizon 2020 (g.a. 764738).
Supported by the British Heart Foundation and Evelina Children's Heart Organisation.